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what is the life expectancy of someone with mycosis fungoides

by Liliane Bogan Published 2 years ago Updated 2 years ago
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  • In cases where mycosis fungoides are considered low risk, the life expectancy of the patient is above 12 years.
  • In intermediate-risk patients, the expectation is greater than 5 years.
  • While in patients with a worse prognosis, survival is usually less than 3 years . ...

The overall survival and disease-specific survivals of our 525 patients with MF are shown in Figure 1. The median survival was 11.4 years, and the actuarial overall survival rates at 5, 10, and 30 years were 68%, 53%, and 17%, respectively. The median follow-up time was 5.5 years (range, 0.1-38.5 years).Jul 1, 2003

Full Answer

Which 3 foods to avoid for mycosis fungoides?

What are the Symptoms of Mycosis fungoides?

  • Scaly red rash in areas that don’t get sunlight
  • Raised scaly and itchy round patches of skin
  • Patches of skin with lighter color than surrounding skin
  • Small Lumps that form on the skin
  • Hard red plaques
  • Enlarged lymph nodes
  • Hair loss
  • Thickening of the skin on the palms and soles

Can hypopigmented mycosis fungoides be cured?

There is no cure for mycosis fungoides till today but it can be treated. Many scientists are working to find out a definite cure for this condition. Remission and relapse of this disease are quite common: In the early stages, the treatment is started with the local application of creams, gels or lotions on the skin.

What is the life expectancy of someone with lymphoma cancer?

  • Age older than 60
  • Stage 3 or 4
  • Lymphoma in more than one organ of your body outside the lymph nodes
  • Needing a lot of help with daily activities
  • Having a high level in your blood of LDH (a protein that increases with tissue damage)

Is mycosis fungoides contagious?

Note: Mycosis Fungoides is non-contagious and is not transmitted from one individual to another. One cannot contract the condition through close physical interaction with the affected individuals. What are the Signs and Symptoms of Mycosis Fungoides?

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How long can I live with mycosis fungoides?

Almost all patients with stage IA MF will die from causes other than MF, with a median survival >33 years. Only 9% of these patients will progress to more extended disease. Patients with stage IB or IIA have a median survival greater than 11 years.

How fast does mycosis fungoides progress?

Consequently, the overall average disease duration in progressing patients is 12.4 years. Blast transformation occurs in 85% of all cases in the tumor stage. Conclusions: The course of progressing MF is chronic and advancing. The progression is initially slow and later accelerates.

Can you survive mycosis fungoides?

Clinical Implications. Survival in stage IB mycosis fungoides is significantly reduced in up to one in five patients, with death within 5 years of diagnosis. Survival is poor in advanced mycosis fungoides and Sezary syndrome, and 5-year survival rates range from 20–60%.

How serious is mycosis fungoides?

For many people, the first sign of mycosis fungoides is a skin rash that is otherwise symptom-free. Without treatment, this rash may become itchy or develop ulcers. There is no cure for mycosis fungoides. With timely treatment, many people experience years with no symptoms.

What triggers mycosis fungoides?

The exact cause of mycosis fungoides is not known. Current theories include antigen persistence, retroviruses (e.g., HTLV-1, etc.), and exposure to cancer-causing (carcinogenic) substances.

Do you feel ill with mycosis fungoides?

In the late stages of mycosis fungoides, there may be a general feeling of illness as the condition spreads throughout the body. Symptoms include: severe fatigue. weakness.

Does mycosis fungoides always progress?

Mycosis fungoides usually occurs in adults over age 50, although affected children have been identified. Mycosis fungoides may progress slowly through several stages, although not all people with the condition progress through all stages.

How often does mycosis fungoides progress?

Consistently, the results of this and other recent studies10,12,13 indicate that the risk of disease progression within the first 10 years after diagnosis is about 5% to 10% for patients with stage Ia and between 17% and 39% for patients with stage Ib disease.

How long can a person live with T-cell lymphoma?

Patients who have stage IIB disease with cutaneous tumors have a median survival rate of 3.2 years (10-year survival rate of 42%) Patients who have stage III disease (generalized erythroderma) have a median survival rate of 4-6 years (10-year survival rate of 83%)

What are the stages of mycosis fungoides?

Mycosis fungoides may go through the following phases:Premycotic phase: A scaly, red rash in areas of the body that usually are not exposed to the sun. ... Patch phase: Thin, reddened, eczema-like rash.Plaque phase: Small raised bumps (papules) or hardened lesions on the skin, which may be reddened.More items...•

Can mycosis fungoides go into remission?

Half of the patients with patch stage mycosis fungoides and also half of the patients with plaque stage mycosis fungoides were in complete remission when the study ended. Most of them had remission periods for years after early PUVA treatment.

Do mycosis fungoides come and go?

Classic mycosis fungoides They can disappear spontaneously, stay the same size or slowly enlarge. They are most common on the chest, back or buttocks but can occur anywhere. They are often mistaken for more common skin conditions, such as eczema or psoriasis, sometimes for many years.

Is mycosis fungoides malignant?

Translated from spanish Improve translation. Despite the fact that mycosis fungoides is a chronic disease and malignant disease that affects people of all ages and ethnic groups, the life expectancy of the patient is not affected to a greater extent, at least in the first stage. A person diagnosed with mycosis fungoides can live a normal life like ...

Can mycosis fungoides be a normal life?

A person diagnosed with mycosis fungoides can live a normal life like the general population, while the disease is controlled by treatment. You can spend a lot of time (even years) for the mycosis fangoide get to the second stage, in which yes can cause severe damage to the health and compromise the life of the patient. Diseasemaps.

Mycosis Fungoides Symptoms

Symptoms of mycosis fungoides can differ as the disease progresses. It can take many years, if not decades, for the symptoms and skin changes to move through various stages. Mycosis fungoides is most often diagnosed in adulthood, although it is possible that it can develop during childhood.

Causes

There is no known cause for mycosis fungoides. Research is currently ongoing to determine the cause by investigating genetic mutations inside the cancer cells. Genetic mutations have the potential to alter a person's DNA and cause cancer cells to form.

Diagnosis

In the initial stages of the disease, it may be difficult for a diagnosis of mycosis fungoides to be made, as it often resembles other, mostly benign (noncancerous) skin disorders. Some of these skin conditions may include: 2

Treatment

A variety of treatment options exist for mycosis fungoides and depend on the stage of the condition.

Prognosis

Mycosis fungoides is considered to be an indolent lymphoma, meaning it grows and progresses very slowly over time. The ultimate prognosis depends upon the stage of the cancer.

Coping

Experiencing the skin changes related to mycosis fungoides and having a diagnosis of cancer can be distressing. Seeking support from your healthcare team on how to manage symptoms and treatment-related side effects is important.

A Word From Verywell

If you’re concerned about any skin lesions you may have, especially ones that aren’t improving with treatment and time, reach out to your healthcare team for evaluation.

Original

A pesar de que la micosis fungoide es una enfermedad crónica y maligna que afecta a personas de todas las edades y grupos étnicos, la esperanza de vida del paciente no se ve afectada en mayor medida, al menos en la primera etapa.

Translated

Despite the fact that mycosis fungoides is a chronic disease and malignant disease that affects people of all ages and ethnic groups, the life expectancy of the patient is not affected to a greater extent, at least in the first stage.

Causes of mycosis fungoides

Mycosis fungoides is caused by the overgrowth of defense cells called T lymphocytes in the skin .

Mycosis fungoides: first symptoms

Mycosis fungoides is a slowly progressive disease with few symptoms , characterized by having different stages in its development:

Treatment of mycosis fungoides

The diagnosis of mycosis fungoides is made by examining the skin wounds, assessing their size and quantity. Blood tests should be done by means of a hemogram to determine an alteration of the lymphocytes, and it may even be necessary to take a biopsy for the microscope study of skin wounds.

Mycosis fungoides: life prognosis

Mycosis fungoides is a disease that is characterized by being of slow progression and with few symptoms during its evolution, developing during 2 to 10 years . However, it is a malignant condition that can significantly decrease the life expectancy of the affected person:

How long does mycosis fungoides last?

The rash may last for months or years without causing any symptoms. Over time, a thin, reddened, eczema-like rash may develop, followed by thickened, red patches of skin.

What is the disease of mycosis fungoides?

Mycosis fungoides is a disease in which T- cell lymphocytes (a type of white blood cell) become malignant (cancerous) and affect the skin. This condition is one of the most common types of T-cell lymphoma. Mycosis fungoides is characterized by a scaly, red rash that develops on the skin, particularly on areas that are not usually exposed to the sun. The rash may last for months or years without causing any symptoms. Over time, a thin, reddened, eczema-like rash may develop, followed by thickened, red patches of skin. Finally, tumors form which may develop into ulcers and become infected. Mycosis fungoides is difficult to cure. Treatment is usually palliative, with the intention of relieving symptoms and improving the quality of life. [1]

What is the survival rate of stage IA?

that expected based on age, sex and race) -- a 10-year survival rate of 97-98%.

Can mycosis fungoides be cured?

Finally, tumors form which may develop into ulcers and become infected. Mycosis fungoides is difficult to cure .

Is mycosis fungoides indolent?

Mycosis fungoides (MF) has an indolent (low-grade) clinical course, which means that it may persist in one stage, or may slowly progress to another stage (from patches to thicker plaques and eventually to tumors ) over years or sometimes decades. [2] .

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Mycosis Fungoides Symptoms

Causes

  • There is no known cause for mycosis fungoides. Research is currently ongoing to determine the cause by investigating genetic mutations inside the cancer cells. Genetic mutations have the potential to alter a person's DNAand cause cancer cells to form. There are some findings to suggest that certain HLA genes (genes that help the immune system tell the difference between …
See more on verywellhealth.com

Diagnosis

  • In the initial stages of the disease, it may be difficult for a diagnosis of mycosis fungoides to be made, as it often resembles other, mostly benign (noncancerous) skin disorders. Some of these skin conditions may include:2 1. Discoid lupus erythematosus(a form of the autoimmune disease lupus) 2. Eczema(inflammatory skin condition that causes a dry, scaly, itchy rash) 3. Leprosy(a r…
See more on verywellhealth.com

Treatment

  • A variety of treatment options exist for mycosis fungoides and depend on the stage of the condition.
See more on verywellhealth.com

Prognosis

  • Mycosis fungoides is considered to be an indolent lymphoma, meaning it grows and progresses very slowly over time. The ultimate prognosis depends upon the stage of the cancer. In early stage 1 disease, patients who have been getting treatment are likely to have a normal life expectancy. Life expectancy decreases as the disease progresses, with peop...
See more on verywellhealth.com

Coping

  • Experiencing the skin changes related to mycosis fungoides and having a diagnosis of cancer can be distressing. Seeking support from your healthcare team on how to manage symptoms and treatment-related side effects is important. Finding support from family, friends, or through formal support groups or counseling can help someone deal with the feelings associated with this dise…
See more on verywellhealth.com

A Word from Verywell

  • If you’re concerned about any skin lesions you may have, especially ones that aren’t improving with treatment and time, reach out to your healthcare team for evaluation. Receiving a cancer diagnosis can be distressing, but it is very possible to have a long life with mycosis fungoides, as it is slow growing, taking many years to progress. Getting treatment when needed and sticking t…
See more on verywellhealth.com

1.What is the life expectancy of someone with mycosis …

Url:https://askinglot.com/what-is-the-life-expectancy-of-someone-with-mycosis-fungoides

18 hours ago  · What is the life expectancy of someone with mycosis fungoides? Patients diagnosed with stage IA mycosis fungoides (patch or plaque skin disease limited to < 10% of the skin surface area) who undergo treatment have an overall life expectancy similar to age -, sex-, and race-matched controls (10-year survival rate of 97-98%)

2.What is the life expectancy of someone with Mycosis …

Url:https://www.diseasemaps.org/mycosis-fungoides/top-questions/life-expectancy/

33 hours ago A person diagnosed with mycosis fungoides can live a normal life like the general population, while the disease is controlled by treatment. You can spend a lot of time (even years) for the mycosis fangoide get to the second stage, in which yes can cause severe damage to the health and compromise the life of the patient.

3.Mycosis Fungoides: Symptoms, Diagnosis, Treatment

Url:https://www.verywellhealth.com/mycosis-fungoides-symptoms-diagnosis-treatment-5199210

15 hours ago  · Beside above, what is the life expectancy of someone with mycosis fungoides? Patients diagnosed with stage IA mycosis fungoides (patch or plaque skin disease limited to < 10% of the skin surface area) who undergo treatment have an overall life expectancy similar to age -, sex-, and race-matched controls (10-year survival rate of 97-98%)

4.What is the life expectancy of someone with Mycosis …

Url:https://www.diseasemaps.org/mycosis-fungoides/tq-translate/life-expectancy/12704/

28 hours ago  · In cases where mycosis fungoides are considered low risk, the life expectancy of the patient is above 12 years. In intermediate-risk patients, the expectation is greater than 5 years. While in patients with a worse prognosis, survival is usually less than 3 years . However, these prognoses depend on the stage of the disease, the worst cases being those with visceral, …

5.Mycosis fungoides: treatment, causes and prognosis

Url:https://fastlyheal.com/mycosis-fungoides-treatment-causes-and-prognosis/

32 hours ago  · Mycosis fungoides is a disease in which T-cell lymphocytes (a type of white blood cell) become malignant (cancerous) and affect the skin. ... For other diseases, symptoms may begin any time during a person's life. Prenatal . Before Birth. Newborn . Birth-4 weeks. Infant . 1-23 months. Child . 2-11 years. Adolescent . 12-18 years. Adult Selected ...

6.Mycosis fungoides - About the Disease - Genetic and …

Url:https://rarediseases.info.nih.gov/diseases/3863/mycosis-fungoides/

20 hours ago What is the life expectancy of someone with mycosis fungoides? Patients diagnosed with stage IA mycosis fungoides (patch or plaque skin disease limited to < 10% of the skin surface area) who undergo treatment have an overall life expectancy similar to age-, sex-, and race-matched controls (10-year survival rate of 97-98%)

7.What is the mortality and prognosis of cutaneous T-cell

Url:https://www.medscape.com/answers/2139720-89922/what-is-the-mortality-and-prognosis-of-cutaneous-t-cell-lymphoma-ctcl

6 hours ago  · What is the life expectancy of someone with mycosis fungoides? Patients diagnosed with stage IA mycosis fungoides (patch or plaque skin disease limited to < 10% of the skin surface area) who undergo treatment have an overall life expectancy similar to age -, sex-, and race-matched controls (10-year survival rate of 97-98%)

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